Resources

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  Quick Reference Handbook

  This Quick Reference Handbook of Selected Congenital Anomalies and Infections is a companion tool to Birth defects surveillance: a manual for programme managers, and is intended for use by front-line […]

   
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  A manual for programme managers

  The manual is a collaborative effort between the World Health Organization (WHO),
  the National Center on Birth Defects and Developmental Disabilities from the US Centers for Disease Control and Prevention (CDC)
  and the International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR)

   
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  Birth Defect Surveillance Training: facilitator’s guide

  The Birth Defect Surveillance facilitator (train-the-trainer) guide 2nd edition covers foundational skills needed to begin the development, implementation and ongoing improvement of a congenital anomaly surveillance program, whether population-based or […]

   
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  PreSurv Suite

  PreSurv Suite is public domain suite of software tools designed for the global community of public health practitioners and researchers, for the Prevention and Surveillance of birth defects. It provides […]

   

• PEACE Tool

  PEACE – Population Estimate of Attributable Fraction of Congenital Conditions Everywhere Download in your computer and use. Send your comments to centre@icbdsr.org

   

• Survival Studies – Published or Submitted

  Project Status Esophageal Atresia Birth Defects Res Diaphragmatic Hernia Ann Epidemiol. 2020 Nov 27:S1047-2797(20)30415-4. doi: 10.1016/j.annepidem.2020.11.007. Online ahead of print. PMID: 33253899 Hydrocephalus Manuscript in CDC clearance Omphalocele Birth Defects […]

   

• The Story of Folic Acid Fortification

  A new documentary on the history of folic acid by Birth Defects COUNT, CDC’s global initiative to reduce death and lifelong disability.

   
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  Annual Report

  The 2024 Annual Report is now available to view HERE.   Annual Report 2014 The PDF version of the Annual Report is available for download. Past years PDF version available […]

   

• Monthly Newsletter Clearinghouse

  What’s Going on Regarding Birth Defects
  A review of the recent evidence to better characterize congenital Zika syndrome and to inform pediatric clinicians who may be called on to evaluate and treat affected infants and children was published in JAMA Pediatrics.

   

• ICBDSR Statement at the 138th WHO Executive Board Meeting

  The Clearinghouse, as NGO in official relations with WHO, submitted a statement at the 138th WHO Executive Board Meeting, held in Geneva, Switzerland, from January 25 to 30, 2016. The […]